Nearly three quarters of children with brain injuries struggle at school, survey finds

A PhD research study jointly funded by the NIHR ARC East Midlands and the University of Nottingham found that 72 per cent of under-18s living with an acquired brain injury also struggle to take part in sports, social activities and even everyday tasks at home.

Of the 51 families that completed the survey, 67 per cent of the children and young people said they often feel sad, angry or scared.

According to the findings, the effects of brain injury are long-lasting, with many families reporting ongoing issues up to four years after injury. 

The impact of acquired brain injury extends beyond young people, placing significant strain on parents and carers. More than half (53 per cent) reported that their own wellbeing and family life had been affected, with many describing feelings of exhaustion, emotional distress, worry and overwhelm. 

In addition, the survey found that 37 per cent of parents and carers of children with an acquired brain injury were at risk of anxiety, depression or both. 

Approximately 40,000 UK children and young people sustain an acquired brain injury each year, caused by accidents such as falls, as well as brain tumours, infections, brain swelling or bleeding.

The survey was carried out as part of the ARC East Midlands and University of Nottingham -funded EPIC ABI Study – Enabling Participation in Children and Young People with Acquired Brain Injury and their Families.

The EPIC ABI Study has been working closely with children and young people with acquired brain injury and their families to understand what support they need to feel well and participate fully in everyday life.

At a recent co-design workshop, the research team shared their findings and key challenges. Discussions highlighted several priorities to improve the lives of affected children and young people, including the need for specialist multidisciplinary rehabilitation packages, coaching, education and training, better cross-sector communication, and clear signposting and referral pathways.

Dr Rachel Keetley, NIHR ARC East Midlands 2025 Pre-Application Support Fellow and Clinical Specialist Physiotherapist at Nottingham Children’s Hospital, said: “These findings highlight just how far-reaching the impact of acquired brain injury can be – not only on children and young people, but on their families too. 

“Understanding their day-to-day challenges allows us to develop the right support, from tailored rehabilitation to practical guidance, so that every child has the opportunity to participate fully in school, play and family life.”

For more information and to access the research study results, click here.